Tag Archives: teamlisa

Heart Month Special Heart & Stroke Survivor Stories

February is American Heart Month: a month dedicated to raising awareness of heart disease and stroke. Heart disease and stroke cause 1 in 3 deaths among women each year, killing approximately one woman every 80 seconds.

I know facts and statistics are important- even imperative to funding research, educating the public and developing drugs to assist patients. Yet, my primary interest and what I like to share is the people who are effected by cardiovascular disease. And sadly, there are plenty of them.

Since personal health stories are most impactful, I’m thrilled to announce an exciting initiative for my ISurvivor Lisa Deck Facebook page this month.

Thirty days of Heart & Stroke Survival Stories to inspire, educate and get you engaged in the conversation during Heart Month!

I’m continuously amazed at the strength, resiliency and passion of cardiovascular and stroke survivors and caregivers. Clearly, with incidence numbers so high, there are many people affected by these diseases…I’m fortunate to know an army of the most dedicated ones.

Serving as a longtime volunteer with the American Heart Association, I have made meaningful connections with many volunteers and advocates, and have ultimately learned that I am not alone. I’ve lost much from four strokes, two brain surgeries and a rare disease diagnosis, but gained even more: perspective, inner strength, a deep faith, unconditional family & friends and a network of peers who have overcome similar obstacles. I’m thrilled to introduce you to some of these incredible people over the next month. Please check out www.facebook.com/ISurvivorLisaDeck daily in February!

I reached out to my friends and network of people involved in the “Heart World” and am thrilled at so many quick and enthusiastic responses. Please learn about these heart heroes and the difference they are making. I truly believe in the harnessing of positive energy through shared connections. These heroes are just living their lives but ultimately making our communities better by sharing their challenges and victories.

Happy Heart Month! Please don’t forget to Wear Red & Raise Your Voice on National Wear Red Day – Friday, February 3, 2017. Please use the hashtag #GoRedWearRed and tag me (@ISurvivorLisaDeck) in your pictures.

Like I did last year, I hope to make a collage of all the people who are going red and making a difference!

 

Meet my #HeroOfOptimism

My husband is my #HeroOfOptimism for his unwavering support and calmness during the most tumultuous year of my life.

IMG_1439While perusing Twitter and FaceBook last week, I noticed a #LifeIsGood post asking people to share their Heroes of Optimism.  I immediately thought of my calm and positive husband, Brian.  He isn’t a fan of personal publicity but I would like to share this with my friends and family.

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Just over a year ago, as a 39-year-old mother of two, I suffered a fourth stroke. I had suffered three strokes in my early twenties and underwent debilitating treatment. Fortunately, I had been living a somewhat normal life for fourteen years when my fourth stroke occurred. After my last stroke, I was shocked to be diagnosed with a new rare brain disease, Moyamoya disease. There is no cure for Moyamoya but treatment is brain surgery I soon learned that I would need not just one but two brain surgeries. With the help of my husband, we made the courageous decision to travel across the country to a premier neurosurgeon for bilateral brain bypass surgeries.

With two children under ten, Brian was dedicated to maintaining a normal routine and life for them. Brian balanced his stressful career and being a full-time caretaker to me while keeping life consistent and positive for our kids. On top of being his usual involved father, Brian seamlessly took on the role of husband, mom, employee, boss, public relations consultant, advocate, confidant, counselor and family CEO. I was facing the battle of my life and had much anxiety and fear going into two brain surgeries. Brian remained calm and reassuring at all times- to me and the children. He selflessly devoted himself to my well-being, care and comfort before, during and after my 8 and 10 hour surgeries (one week apart.) He supported me when I had speech issues, making me signs to carry in case I needed to communicate. He held me when I needed assistance walking. He bathed me, managed my medications and pain and (literally and figuratively) did all the heavy lifting and caring for me and the children.

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Brian remained positive and confident in me and my course of treatment the entire time. He let me discuss my fears but always provided positive thoughts and optimism. He hugged me, held my hand and reminded me always that I would overcome these challenges. Brian, with the help of family and friends, created #teamlisa. Through my three weeks away, Brian religiously updated #teamlisa via social media. Not only was he my light of optimism and positivity, Brian provided that information and security to my family and friends around the country.

Team Lisa

Brian wasn’t in my life during my early health challenges, but I’m so thankful he was here for me during this latest, scariest one. I was able to stay positive and overcame a stroke and two brain surgeries thanks to my husband, Brian. He is my #HeroOfOptimism.