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Lisa Deck

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Suffering her first three strokes twenty years ago, Lisa has been a patient activist and international speaker for the past two decades.   Lisa lobbies at the local, state and Federal level for health and awareness policy development . She is a widely known advocate voice that inspires others and raises awareness of heart disease, stroke and Moyamoya disease.

In 2015, Lisa was diagnosed with Moyamoya Disease, a rare cerebrovascular disease, after an 18-year diagnostic odyssey. She underwent two brain bypass surgeries to restore blood flow to her brain.  Since then, Lisa has become actively involved in rare disease advocacy, serving as a Committee member of Rare New England. On behalf of Rare New England, Lisa produces and hosts a local cable show, The World of Rare Disease.  Lisa is also active with the newly formed Moyamoya Foundation.  Lisa lives in North Attleboro, MA with her husband and two children.

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